Another good day...
Really very little to blog about...Noah continues to look well...better than we've seen him look in a very, very long time. Amazing what some good nutrition can do. The consult has been done to Toronto, and so now we wait to hear back from them. We are all hoping to do this through teleconferencing, rather than having to travel. We just really don't want to have to leave the family again and be in Toronto for an indefinate amount of time. But we will wait to see what they suggest.
Home TPN is in place for next week...just waiting on home IV program. Hopefully by the middle of the week we will be home!! With an end in sight, the days just seem to get longer! I am so itching to be out of here.
On September 21/05 we were blessed with a beautiful son. Born with a chromosome 12q deletion (q15q21.2), the challenges were many...cleft lip/palate, complex feeding issues, developmental delays, failure to thrive, multiple infections, blood clots, asthma, sleep apnea, GI and pulmonary bleeds, TPN dependency and kidney issues. Noah embraced life and taught us how to love. On July 29/09, Noah's journey ended, leaving us on a new journey...this journey on the pathway of grief...
About Me
- Nichole
- I am mom to 3 beautiful children. I also work casual as a nurse. Our life is a crazy one, and nothing like we ever expected it would be. Yet, this journey has changed me and the way I view others. And it has helped us slow down and enjoy the most precious things in life. I wouldn't trade those lessons for anything.
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4 comments:
I'm glad you don't have much to blog about! That's not such a bad thing after the last three weeks! I'm so glad Noah is going so much better! It is just truly a miracle! I hope you get home next week, as planned!
good news. i am sure noah will be thrilled to be home soon too
Boring with Noah...that is a good thing! We missed you last night...the guys actually got me playing car racing! Funtimes! Looking forward to you being home with your little Bean...love you both.
Wow!!!! Awesome! U guys hang in there! We are still praying!
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