PICU Day 14

Finally...a quiet day with very little to blog about. We are seeing more and more of our Noah coming back to us. He is spending more time during the day off the CPAP, and is slowly gaining his energy back. He can sit up for a few minutes at a time now...of course, he is especially motivated when his Baby Noah animals are on the dvd player! We have had our first full day of no bleeding while off the Pentoprazole infusion! We are very slowly and cautiously attempting small amounts of GJ feeds (still doing full TPN as well). And he is gaining weight!

The newest plan is to wean Noah off the CPAP completely during the day (while awake) over the weekend, but continue use for sleeping. Then Monday it's time to regroup regarding his lung issues. The attending is thinking that perhaps continuing nighttime CPAP would be helpful, as it would allow Noah to conserve more calories while sleeping. As we can tell from the monitors, despite his last good sleep study, sleep apnea has become a big issue for Noah again. So perhaps not having oxygen at night the past few months has been contributing to his weight loss. Once the CPAP issue gets sorted out, and if he remains stable, he can be transferred to the ward!