Monday, June 22, 2009

Toronto Day 21

Today was a long day spent at the hospital. Still tweaking the TPN...Noah was gaining weight over the weekend, but with the increase in lipids, his triglycerides are now too high. So the lipids have now been stopped altogether, until his level goes back down. And we had to increase the glucose, which means we are slowly losing our hours of freedom. We had to go back to 16 hours of TPN today. This still gives us a full 8 hours line free, but it is tough to give back those wonderful hours off the pump. We also started seeing some blood again from his stomach and his ph was dropping. So we've increased his pantoprazole dose once again.

And we finally have a plan...

Biopsy results today revealed nothing. Although I am told this is good news, (and I figured nothing would show up), a part of me was hoping for something to be revealed. Sometimes a definate answer is better than no answers at all.

So, the new plan is for surgery on Friday. As to what exactly Dr Wales will do...I have some idea, but will get more specific details tomorrow. And after surgery, we are to expect to be here another month or so. In light of this news, we have decided that our family cannot be separated for that long. So we are going to try to get Brad and the kids here. Still working on the financial aspects, as it is not working out to use our airmiles. But I miss them terribly and cannot imagine another month or more without them. Since school is ending, the timing is good. I'm still working on getting my head around settling in here for the long haul and giving up yet another summer. Praying this will all be worth it.


laura.h said...

Oh Nichole,
I really missed you and Noah on Father's day. My heart breaks for you just thinking about how hard it is to be separated from your family. I'm not sure I would be able to do it. I'm so glad Brad and the kids are able to get there...I will pray about finances. We love you and will be praying especially hard on Friday. It's gonna be so worth it!

Kim said...

I'm sorry to hear that you will be away so much longer than initially anticipated. It breaks my heart to hear that, and know that your family is apart. I miss you terribly and can't imagine how much you and Noah miss the rest of your family. I wish I could jump on a plane to see you. If there is ANYTHING we can do, please do let us know! Many prayers for the rest of this week, the doctors and Noah's surgery. Missing you both, hugs to my Bean...

Kelsie-Lynn said...

We are praying for you guys regularly but especially today.

Anonymous said...

Nichole: My dear, what can I do to help?!? I know you are pleased to have a plan, and that it seems that Noah will have his surgery on Friday, but I can hear your pain given the extended separation of your family.

As you think about next steps,and whether Brad and the kids come to Toronto, please, please think about what you need - will you all stay at Ronald McDonald House, or do you need help finding something? We're around for the month of July, and my boys take turns being at overnight camp, so I am hoping to have more time - and maybe we can introduce the children (my boys are 10).

Thinking of you, and praying for wisdom for the doctors and peave for all of you as you move forward.

Would you like any company while you wait during surgery?


Ramona said...

I'm praying for discernment for you guys as you advocate for Noah and as they do tests and the scheduled surgery. It sounds like your extended stay would be very hard to do, and it will be so wonderful when your family can be together again.

Anonymous said...

Wow, what a long time for you to be away - I'm so sorry. I hope and pray that Brad and the kids will be able to come and spend a lot of that time with you. We'll keep praying for lots of strength and endurance for you, as well as hope and joy. We love you.