It's been a week now, and Noah is still not responding to treatment. A second antifungal called Caspofungin has been added, but so far he is still spiking high fevers bringing along with it respiratory distress. The RRT was called once again this morning, and they managed to settle him on the ward with fluid and potassium boluses. He has been quite settled throughout the day. His platelets and hemoglobin have once again dropped dramatically, and blood was brought in today in case another transfusion is needed. New blood cultures were drawn today as well. If these come back growing yeast still, then our surgeon will be forced to remove his central line and replace it with a temporary one until we get a handle on things. He has also been started on a course of Prednizone and antibiotics for the pneumonia in both lungs.
To top it all off, Noah's Gtube came out again and part of his stomach has herniated out of his stoma. Once he is well enough, he will need surgery to have his stoma revised before we can place a new GJ tube.
We are all exhausted and concerned. Noah is in a very precarious situation and I can't rid my mind of the "what if's"... I can't even begin to imagine what we would do without Noah, and yet the possibility that we may not beat this is always there. And yet our brave little guy is such a fighter through it all. He can be so sick, and yet still manage the odd smile! We appreciate all your prayers and support so much.
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7 comments:
We are praying as well. Remember, that even in this, God is in control. He is holding you and Noah safe in His arms.My prayer for you is that you would rest in the shadow of the Almighty. Psalm 91 says,"He will cover you with his feathers, and under his wings you will find refuge" We love you all so much. love mom
Hi Nichole - I'm wishing I could be there with you. The "what if" questions are so scary. I'll be praying that he will start to respond to treatment soon.
Looking forward to seeing you all in 2 weeks...
Praying for you all today.
We are praying for you guys.
Just wanted you all to know that we're praying for Noah.
Thinking about you all!
~Rissa
Praying for your family today
Kirsten
(friend of Jamie's)
Hey Nicole and precious little Noah,
So sorry things are not going well for you guys. We are praying for you!!
XO
Janice and Azlan
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