Thanks to our nurse, Anna, for the pictures!
Friday, November 21, 2008
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On September 21/05 we were blessed with a beautiful son. Born with a chromosome 12q deletion (q15q21.2), the challenges were many...cleft lip/palate, complex feeding issues, developmental delays, failure to thrive, multiple infections, blood clots, asthma, sleep apnea, GI and pulmonary bleeds, TPN dependency and kidney issues. Noah embraced life and taught us how to love. On July 29/09, Noah's journey ended, leaving us on a new journey...this journey on the pathway of grief...
2 comments:
I saw your post over on the Disboards, and just spent the last two hours reading your entire blog. What an amazing family you guys are!
Love all pictures. He's still a cutie-patootie!
~Rissa
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