Can't believe it's been 2 weeks already. Time is certainly starting to drag. The plan was to start some tiny feeds today. But Dr Wales is away, so the surgeon who is covering for him came to have a look at how we could thread a tube into Noah's jejunum. He could not figure out exactly where the 2 holes in the prolapsed stoma are, and even if he were to find them, how to know which hole is which. So the whole idea got canned. I was actually quite relieved to not have to mess around with feeding as I hate to rock the boat with Noah in such a good state. But now it really feels as if we are sitting around, doing nothing at all. I hate this waiting bit.
We went out on a pass this afternoon...went for a walk and enjoyed the beautiful weather. Wandered around the huge Eaton Center mall, but with no money to spend, not much to see. One of my old friends from Kitchener, who came for a visit last week has offered to come stay with me for a couple of nights. She is coming tomorrow night and I am really looking forward to the company.
On September 21/05 we were blessed with a beautiful son. Born with a chromosome 12q deletion (q15q21.2), the challenges were many...cleft lip/palate, complex feeding issues, developmental delays, failure to thrive, multiple infections, blood clots, asthma, sleep apnea, GI and pulmonary bleeds, TPN dependency and kidney issues. Noah embraced life and taught us how to love. On July 29/09, Noah's journey ended, leaving us on a new journey...this journey on the pathway of grief...
About Me
- Nichole
- I am mom to 3 beautiful children. I also work casual as a nurse. Our life is a crazy one, and nothing like we ever expected it would be. Yet, this journey has changed me and the way I view others. And it has helped us slow down and enjoy the most precious things in life. I wouldn't trade those lessons for anything.
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5 comments:
Hey Nichole, I'm missing you, we have been praying for you guys!! I hope you have a wonderful evening!
we're keeping you in our prayers, glad to hear you will have some company tomorow.
Erica
Glad you will have some company for a couple of evenings. We're praying for you! Hoping you don't feel quite so lonely, and that some of those results start coming back!!
Thank you, Lord, that Noah is feeling well; that he can get passes to enjoy the outdoors; for suitable weather to go walking; for a friend to come help fill the waiting time; that You are in control. Nichole, we are praying that the time will pass quickly, that test results will come back soon and that the doctors will be able to do something to help Noah for the long term. Love, Grandma L.
Brad told me Heidi was going. I hope you have a wonderful time with her, and that it gives you a much needed break. Hope you get some real answers by the weekend. Praying for you. will miss you so much this weekend.
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