Post-op day 3 and recovery is slow going. Still alot of pain for Noah, requiring his morphine infusion plus bolus doses. Still some respiratory issues, and the ICU team (CCRT) is following Noah closely, coming up 2 or 3 times a day to assess him. Lots of secretions and wheezing today requiring lots of suctioning and ventolin. No one is in any rush to get him out of the monitored room at this point, so we are there for another night. I think Noah's CPAP has been our saving grace, allowing those lungs to recoup at night and getting him through these first post-op days. He spent alot more time awake today and I even got a couple of smiles.
The team is hoping to get Noah off the constant need for suctioning his stomach now that his stomach is able to drain. Today we tried taking Noah off the suction to his NG tube, however he was miserable with much more secretions. Back on suction he went for now and we will try again tomorrow.
Brad went home yesterday and will return with the kids tomorrow evening. Can't wait for everyone to be together!!
On September 21/05 we were blessed with a beautiful son. Born with a chromosome 12q deletion (q15q21.2), the challenges were many...cleft lip/palate, complex feeding issues, developmental delays, failure to thrive, multiple infections, blood clots, asthma, sleep apnea, GI and pulmonary bleeds, TPN dependency and kidney issues. Noah embraced life and taught us how to love. On July 29/09, Noah's journey ended, leaving us on a new journey...this journey on the pathway of grief...
About Me
- Nichole
- I am mom to 3 beautiful children. I also work casual as a nurse. Our life is a crazy one, and nothing like we ever expected it would be. Yet, this journey has changed me and the way I view others. And it has helped us slow down and enjoy the most precious things in life. I wouldn't trade those lessons for anything.
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6 comments:
Praying that Noah is getting better and better, experiencing less pain with each minute!
Glad to hear that Brad and the kids are coming back tomorrow. It will be wonderful for all of you to be together again!
Jules
One more sleep until you are all together again! Praying for a restful night for you and continued healing for Noah. Hugs to my Bean....
Glad you'll all be together tomorrow!!
so glad you will be together tomorow. I saw Kailyn's glasses today...very cute. Praying for a restful night and that Noah will be getting better every day
Erica
Thank you so much Nichole for your postings.Praying that the Lord will continue to give you the sleep you need and the strength to cope with the daily stresses. It's so good to hear that they are keeping a close eye on Noah and we will continue to pray that he won't have any more complications and recovery will be quick.Have a restful night.
I'm glad Brad and the kids will be with you soon. love Auntie Hilda
Praying that today will hold less pain for Noah, and that you might see more smiles, and so thankful that Brad and the kids are coming today. I talked to the kids this morning and they were so excited. Praying that this family time will be awesome. Thank you God for your faithfulness. We love you and miss you and our precious baby Noah. Love mom
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