Noah was moved back to the ward yesterday. We are so thankful to be back on our "home" ward and one step closer to home. Noah is doing very well. His strength is returning quickly and he was sitting up for a few minutes today. He is a bit frustrated as his strength isn't returning as quickly as he would like and he is not yet able to do everything he'd like to be doing already. His days and nights are very mixed up and so he wakes at 3am and decides that it is time to play. How can I help bit smile though, when I thought I may never see him play again. Still working on weaning...hoping to be off the morphine infusion in a few days from now, and then we will work on the Lorazepam.
Thank you so much to the wonderful PICU staff for the excellent care Noah recieved. We will always be grateful to you!
On September 21/05 we were blessed with a beautiful son. Born with a chromosome 12q deletion (q15q21.2), the challenges were many...cleft lip/palate, complex feeding issues, developmental delays, failure to thrive, multiple infections, blood clots, asthma, sleep apnea, GI and pulmonary bleeds, TPN dependency and kidney issues. Noah embraced life and taught us how to love. On July 29/09, Noah's journey ended, leaving us on a new journey...this journey on the pathway of grief...
About Me
- Nichole
- I am mom to 3 beautiful children. I also work casual as a nurse. Our life is a crazy one, and nothing like we ever expected it would be. Yet, this journey has changed me and the way I view others. And it has helped us slow down and enjoy the most precious things in life. I wouldn't trade those lessons for anything.
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5 comments:
We stand in awe of our marvelous GOD. When GOD is for us, who can be against us. What a thrill to know we will hear that infectious laugh again. We praise GOD for his unsurpassing greatness and his incredible power. We love you all, and hold yo in our prayers. love mom
What an answer to prayer!
Thank you Jesus for recovery and answering prayers..glad to hear that you are one step closer! God is so very very good!
We have been following Noah's progress as we are in Sao Paulo Brasil and are praying for your family as you pray and hope and are seeing him make positive improvements.
Love and prayers,
Emmy
Praid God! Nichole that's great news! One step closer to home...and that thought alone is just soothing.
Praying for your family.
~Rissa
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