Noah lost the fight early this morning to breathe on his own. He began having respiratory distress again around 1am. At 4am he started to crash. He could no longer keep his O2 sats up on his own and had to be intubated quickly. Even with the intubation, the staff was unable to ventilate his lungs. A chest xray showed that they were so bad that almost no air was moving in them at all. After being unable to raise his sats above 50 with ventilation, we thought that we may not be able to resuscitate him. The staff decided to try him on the Oscillator and after a couple of attempts, his sats began to pick up. This is one step above ventilation support, and he is needing high settings. So he is almost maxed out on the amount of support that is available to him but he is now satting well on the Oscillator and his blood gases and chest xrays are showing small signs of improvement over the course of the day. We are still trying to keep his blood pressures stable with Dopamine. There is not much left that can be done at this point except to wait and see if his lungs will have a chance to recover and if his other organs can remain stable enough to fight off the infections. He is paralyzed to keep him from fighting the tube and sedated for comfort and he gets to rest and no longer has to fight for every breath. He fought until they intubated him though! Even with sats of less than 50 when he was being bagged, he fought hard against the mask.
After almost losing him this morning, I just want more time. I'm just not ready to lose him yet! And yet I know I have to be willing to place him in God's hands.
Subscribe to:
Post Comments (Atom)
20 comments:
I have been following your story for quite a while now... Please know that a family in California is praying for Noah especially today. You are an amazing family that has taken one day at a time with God's Word to guide you. You are an inspiration to me and I will continue to pray for Noah and all of your family.
I know what you mean when you say, you just want more time. He has been such a trooper and a fighter through all this, and yet it must be so hard to watch him struggle. He has so many battles ahead of him. Our prayer is that God would give both of you much wisdom, and much grace. We have prayed for all of you every moment today, and if you say the word, we will be there. Remember, that the battle isn't yours, but God's. His love and compassion for Noah reaches far beyond our own. God is your shelter, your refuge, and your protecter. Trust in His promises. He will never leave or forsake you, and He will never let go of Noah's hand. God will never abandon him, but will draw him closer to himself. I believe that Noah senses the hand of Jesus, even during this time. We love you, and are holding you up in prayer. Love mom and dad
He who dwells in the shelter of the Most High will rest in the shadow of the Almighty. I will say of the Lord, "He is my refuge and my fortress, my God, in whom I trust." ...He will cover you with his feathers, and under his iwngs you will find refuge, His faithfulness will be your shield and rampart. Psalm 91 love mom
My family and I are praying for you and yours.
(From Emo, Ontario)
i'm a friend of Erik & Jamie's and have been reading about Noah's Journey for a long time now...
i'll be praying so hard for you tonite...i can't imagine how long & hard this road has been for you. i'll be praying for peace & comfort for you tonite as you watch over your little boy.
blessings - Janelle.
I can't even imagine...we are praying for you all.
Love
Nicole and Helmut
Hi, just wanted to remind you like everyone else, that we (your church family) are praying for you and for little Noah! We know he is in God's hands and we pray for strength for you guys and for little Noah as he fights his hardest!
Jill
Our hearts go out to you. Praying God's strength as you sit beside your beloved son. We will pray God's will be done. Noah has suffered so much and has fought so hard. He truly has been an inspiration to many all around the world. Auntie Hilda
I am still praying. I have been reading through Noah's journey from the beginning, and am so captivated by him.
We are praying for your little Noah.
"Gods Blessing"
"But now, this what the LOrd says- He who created you, Oh Jacob, He who formed you, Oh Israel."FEAR NOT, FOR I HAVE REDEEMED YOU, I HAVE SUMMONED YOU BY NAME, YOU ARE MINE. WHEN YOU PASS THROUGH THE WATERS, I WILL BE WITH YOU, AND WHEN YOU PASS THROUGH THE RIVERS, THEY WILL NOT SWEEP OVER YOU. WHEN YOU WALK THROUGH THE FIRE, YOU WILL NOT BE BURNED; THE FLAMES WILL NOT SET YO ABLAZE. FOR I AM THE LORD YOUR GOD, THE HOLY ONE OF ISRAEL, YOUR SAVIOR...ISIAH 43:1-3
Brad, Nichole, Kailyn, Joshua & Noah
Psalm 121
I lift my eyes to the hills- where does my help come from? My help comes from the Lord, the Maker of heaven and earth. He will not let your foot slip-he who watches over you will not slumber; indeed, he who watches over Israel will neither slumber nor sleep. The Lord watches over you-the Lord is your shade at your right hand; the sun will not harm you by day, nor the moon by night. The Lord will keep you from all harm- he will watch over your life; the Lord will watch over your coming and going both now and forevermore.
We love you guys and are praying for you,
Kim
Nichole, our thoughts and prayers are with you, Noah, and the rest of your family! Please keep us posted.
Nichole, my heart breaks for you. You are such a strong and brave woman (and family) - I have no words that could possible give you the comfort that you need, just know that there are so many of us that have been touched by you and your family, we all love and care for Noah without even knowing him. You are a true inspiration to us all. We can only hope that things get better for Noah, he's been through so much. Best wishes to you and your family.
Sandi
Sept 05 group.
We are thinking of you and your family. After over 2 years of growing together, I hate to hear that Noah isn't doing well.
Many Hugs -
Marissa (Amelia and Wilson)
Sept 05 group.
Nichole -
Kelly from the list, just wanting to say hello and tell you that I'm thinking of you all. Noah is such a fighter, you must be very proud! Hoping for good news in the coming days.
Nichole, we are all praying for Noah and for your family.
April
Just a little more time seems like such a small request... And yet how true. I'm praying for you guys. Remember that God is holding you as you are in this storm. May you hear His voice and feel His arms around you as a quiet stillness in the midst of the confusion and happenings of the days.
Hi there,I am a friend of Kerri Kincaid,Ramonas sister and I just want you to know that my heart absolutely breaks for little Noah but more so for the pain that you and your husband are in. I pray God's amazing and total peace on you during this time. Its so hard to understand why these things happen Please know that you and your whole family are an inspiration of amazing faith in our amazing Lord. I will continue to pray for little Noah. Your sister in Christ, Meg (Seattle,Washington)
Brad & Nicole, may you continue to had Gods strength in your journey, we pray for strength for you and Brad as a couple. Rich & Karen
Post a Comment