Rough Day

We are told to expect a very rocky road, but it's tough when we thought we had made a bit a progress yesterday to have a day like today. This morning Noah's blood gases started going downhill again and we were forced to go back up on his oscillator settings. It was discouraging and frightening to see how critical his condition is and how quickly it changes hour by hour. Just when we think we have a moment to breathe, things change again.

We have had to increase his sedation to a combination of Morphine and Medazalam because his blood pressure and heart rate would go sky high whenever he was touched. So the Fentanyl just wasn't enough to keep him comfortable. And we are having alot of problems with Noah's platelets as well. He recieved another 3 platelet transfusions today and they are being used up almost as fast as we can give them. He's been having a fair amount of bleeding from his mouth and nose. His hemoglobin was down to 70 today as well, so he also recieved a unit of blood. We also had to put him back on a continuous insulin infusion because his sugars have been skyrocketing. He is even more swollen today but we have started Lasix which is helping his kidneys get rid of some extra fluid. The good news for today...since his old line was removed, Noah remains fever free for the first day in 2 weeks! We drew new blood cultures this evening from the new line and from his arterial line so we will wait to see if they grow anything.

This evening things are more settled again and I think I should be able to get a few hours of sleep. Thank you so much for all the support and prayers.