Monday, February 11, 2008
Status Quo
Not much change today...still sitting at the high oscillator settings...still struggling with keeping Noah's CO2 from climbing too high. This morning's chest xray showed slight improvement...this evenings was about the same. Each day he gets more and more swollen as his kidneys just can't keep up. We've increased his lasix and he is getting Pentaspan boluses as well. The problem is that his potassium keeps dropping with all the diuretics, and then he requires potassium boluses. His blood pressures keep climbing with all the excess fluid, but the lasix does help bring it down somewhat. The good news...no blood or platelets needed today. Platelets are still very low, but high enough that we can sit tight for now. We are all exhausted and the tears just don't stop.
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15 comments:
Nichole, thank you for your honesty. Sometimes it helps me vent when I can just lay it all out there and be honest instead of keeping it all in. Thank you for sharing- although it is so raw and so vulnerable, it allows us to know a TINY little bit of what you must be going through so we can hold you up in our prayers. A dear friend of mine has been watching your site, praying all weekend long for Noah. She just sent me the words to a matt Redmond song that reminded her of you and your family. It's long, so here is a loooong comment for you- but I pray you will feel the Lord's warm love around you and Brad and the kids as you go through the unknowns of the day.
Love,
Kerri Kincaid
“Even though I walk through the valley of the shadow of death
Your perfect love is casting out fear
And even when I’m caught in the middle of the storms of this life
I won’t turn back
I know You are near
And I will fear no evil
For my God is with me
And if my God is with me
Whom then shall I fear?
Whom then shall I fear?
Chorus:
Oh no, You never let go
Through the calm and through the storm
Oh no, You never let go
In every high and every low
Oh no, You never let go
Lord, You never let go of me
And I can see a light that is coming for the heart that holds on
A glorious light beyond all compare
And there will be an end to these troubles
But until that day comes
We’ll live to know You here on the earth
Chorus:
Yes, I can see a light that is coming for the heart that holds on
And there will be an end to these troubles
But until that day comes
Still I will praise You, still I will praise You
I have been reading your blog for a long time. Noah is such a special little guy and your family is in my thoughts & prayers these days. I'm praying that you will feel Jesus wrapping his arms of comfort & love around you tightly.(I'm a friend of Jamie's)
Noah, may the Lord bless you and keep you; may the Lord make his face shine upon you and be gracious to you; may the Lord turn his face toward you and give you peace.
Thinking of you guys lots today and looking forward to seeing you all soon...
As you mentioned your tears not stopping, I had to think of how you are living out Lamentations 2:9:
"Pour out your heart like water before the face of the Lord. Lift you hands toward Him for the life of your young children"
And remember, that as you do, God is right there with you. He is beside you as you sit by Noah or as you lie down to try to rest. And there are so many who are also pouring our their hearts to God for you and dear little Noah.
Ramona
we're praying...
We're praying for you all. Thank you for letting us share in the miracle of Noah. May God show you His face during this crazy difficult time.
Kimberly Muehling (friend of Erin)
To Noah,
Your mom is always beside you.Your family is always praying.So am I. I saw your grandma Kathy, yesterday and I gave her a Valentine to give to you, Joshua and Kailyn. I love you very much but Jesus loves you more.I pray you don't feel any pain.
All my love and prayers to you and your family.
Auntie Bertha
Hi. I'm Nori (Milton)'s father. She has asked us to pray for you folks, especially Noah. We are doing so. No wise words except that I lost my Mom to cancer young (9 yrs old) and I just know that NO MATTER WHAT, GOD IS THERE RIGHT BESIDE US. He is acquainted with suffering ... He watched HIS SON die an UNFAIR death ... murdered by the people who were supposed to be REPRESENTING Him! So, no matter how things are going, God has been there and IS THERE FOR YOU!
Guy Werry
praying for a restful and peaceful night and for oodles of strength. may you know God's grace to be sufficient.
I am so thankful I was able to see him last night and my heart aches for you guys.
there is not a moment that goes by that we are not praying and thinking about you all.
As i tucked the kids in bed last night, praying for Noah has become an amazing opportunity to share to them about heaven and Gods promises for us.
Dear little Noah,
You are so loved!! There are people all over the world who are praying for you, loving you, and hoping you start to feel better soon. You were placed into such a special family and they are taking such good care of you. Jesus is holding you too and nobody loves you more than Him!! You are so brave and strong. We are all very proud of you.
I was told by a friend of mine to read about little Noah and it brought tears to my eyes. It all reminds me of my son Isaiah, the TPN, the crib, the tubes... I just wanted you to know that my heart goes out to you and I'm praying for you.
Heather Bergen
Praying for you guys today.
Nichole,
You all -especially Noah - remain in my prayers. I am so sorry you are going through this. How blessed Noah is to have you right there beside him.
Anne (TPN list)
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