Thursday, July 16, 2009

Home Home

We are home home!!

We are so glad to be home...feels strange, but good. As always, it's a bit of an adjustment, and quite hectic, trying to get organized again with all the medical changes and there is so much to catch up on. And with the kids off to camp next week, my is plan to go out to my parent's cabin close to the camp...the next couple of days will be very busy! But I'm looking forward to getting out to the cabin and enjoying some true summer.

The trip home was another ridiculous experience with Air Canada. How is it that they can make things so miserable?? When we tried to check in for our flight, a manager was called over who informed us that, once again, our oxygen was not on the flight. That was the last straw for me...I was very upset...I just wanted to get home so desperately! That they could screw this up twice, after we are paying extra for this "service" and have jumped through all their medical desk hoops and paperwork nightmares...unacceptable. First I was told that they wouldn't get it until the next which I explained very nicely that this was just not possible. We NEEDED to get to the hospital. The manager contacted the higher ups, explained our situation, and then magically someone tracked down the oxygen and we were on the next flight. The manager did what he could...put us in the Maple Leaf Lounge and bumped us up to first class. But definately not worth the hassle and worry. Air Canada, you have managed to make more customers unhappy...yes, you will be hearing from us. Kim, so sorry we missed you at the airport...wish we had made it in time for you all to welcome us home!

By evening we were settled into our was nice to be back among "family". Yesterday was a day of getting everything organized and working out issues to transition home. We also did an ultrasound on Noah's wound, since it is still draining, but there is just a very tiny pocket of fluid, so it should continue to drain out on it's own and heal up. We are still working on getting our IV pantoprazole for home use...Manitoba Health is making it very difficult. For now we have a couple of weeks of the med from the hospital, and then we may have to jump through some hoops to get more. But hopefully things will be worked out by the time our supply runs out. Today we had a bit of a scare when our home TPN ended up at Winkler hospital instead of Winnipeg. But they sent the truck back for it, and we finally got our delivery.
Thank you so much to the house fairies for cleaning our house and the beautiful flowers...our freezer is also full of food...what a nice treat to come home to!


Kim said...

Welcome home, my friend. It's so nice to know that you are only a hop, skip and a jump away! See you tomorrow and great big welcome home hugs to my Bean...

nicole said...

so glad you're home!!! now we'll just have to find a night race for the guys so that we can get together!!

Linda (khalana) said...

I am so happy that you're home!! :)

Anonymous said...

welcome home, Nichole
so glad you made it finally

Carol said...

I am glad that you are home! I have been trying to keep up with all of Noah's progress. Noah looks like he is so much older than when he took his wish trip-but he still has that same smile that would light up a room! I'm glad you have been able to use Noah's world passport. We only have 1 place that is in our state to use ours ( and we did) but we are taking Nathan to the cardiologist in Ohio this month, so we are going to be able to use it at 6 Flags on our stop in St. Louis on the way home. Your family continues to be in our hearts and prayers.

Carol ( oklamomof4boys)

The Keowns said...

welcome home! Yes, your house looked great (i was there yesterday dropping off Aidan)
The kids were so hyped about camp.
HOpefully the weather warms up for you guys next week at the cabin