The team tried to increase Noah's feeds to 8mL today...I was not happy. Yes, Noah's poops look "glorious" (in Dr Wales words...yep, we get quite excited about nice looking poops around here), but Noah has not been himself these past couple of days. The retching has increased tremendously and he has not felt like doing much...no bum scooting down the hallways. This is Noah saying "slow down!" And there is no rush to get to full feeds (which I found out today is at least 50mLs!!). So we went back down to 6mLs and are increasing his Domperidone to try and get the retching under control. We also increased the glucose in the TPN again as there is still no weight gain, so we had to give up another hour of freedom. Since Noah is connected 20 hrs to the feeding pump anyways, being connected an extra hour to the TPN pump really doesn't make much difference.
We got out for a couple of hours this afternoon and walked to the Hockey Hall of Fame. (No, not my first choice of activities, but we got some free tickets and thought it could pass some time). It didn't hold the kids interest for long, but they did enjoy touching the Stanley cup.