Tuesday, July 28, 2009

PICU Day 2

Things are rough here...we are living hour to hour...things are still critical. The night was very rocky with worsening blood gases. Noah is proving to be very difficult to ventilate. His asthmatic issues really complicate things, causing these long, forced expirations, that do battle with the breathes the ventilator is trying to give him. Ketamine has been added to his ever growing list of drugs to help with the asthmatic issues, as well as lots of ventolin. Many ventilator changes to try and find a happy place for Noah, but we still don't seem to be there yet. Gases are still bad, but not worsening this evening. Noah's blood pressure has begun to drop...he received more albumin and a dopamine infusion was started. He is still spiking crazy high fevers and his kidneys are not functioning well. Nothing has grown so far on any of the cultures and H1N1 results won't be back until tomorrow. So really, not definitive diagnoses yet other than ARDS (acute respiratory distress syndrome).

Line access, as always, has been a major issue again, as Noah is needing more and more meds. Since our central line is only a single lumen and Noah needs that for his TPN, more access was quickly needed. The docs managed to get a double lumen PICC line in his femoral vein, but because of so much scarring, were unable to thread it much. Hopefully it will at least buy us some time.

Praying once again for another miracle.

(Update: 2:00 am July 29 ... Nichole called me (Brad) in early this morning because Noah was going downhill very fast. The Doctors were not sure if he would make it through the night. Noah is currently on medication to sustain his blood pressure and effective heart beat, he is also on the oscillating ventilator and kidneys have shut down. More updates to come as there are any.)

(Update: 12:00 pm July 29 ... This morning at around 9:00 Noah's blood pressure dropped to a critical low and he went into Cardiac Arrest. There was very little the doctors could do except some last effort medications. After almost 2 minutes, Noah (and God) had his own plan and returned to spontaneous circulation. He is still fighting and will have a tough day ahead. Thank you for all the prayers... God is real, he is listening, and answering...)

53 comments:

kimmylaj said...

love and prayers to noah and all of you. praying for a miracle

Kim said...

So many prayers are being said for little Noah and his family. We know the Father is holding all of you. Hugs to my Bean...

Kim said...
This comment has been removed by the author.
Anonymous said...

praying.... praying.... praying.... There is nothing more to say.
- Myrna Dyck

Anonymous said...

praying for a miracle too
Erica

nicole said...

still praying.

Maroo said...

Praying, praying, praying

Kathy said...

Praying.

Jules and Danny said...

Prayers for Noah and your whole family.

Janessa said...

praying for you all.

Mir said...

Praying, praying, praying!!!

Anonymous said...

Praying for God's hand on Noah

Jamie said...

Love you guys and praying for you lots.

Anonymous said...

Saying special prayers for you Noah, Nichole, Brad, Kaitlyn & Joshua!!
Val Penner

Anonymous said...

I follow the blog regularly, thought I would post today. Always praying but praying for a miracle today!

Susan said...

We are praying for you here in Ohio.

Becky said...

Lots of prayers for your family!

Wenona said...

Praying for Noah to pull through once again. He is one tough little guy.

The Keowns said...

praying

Anonymous said...

Praying that God will put His healing hands on Noah, and will give the rest of you the strength and courage to be there for him.

Alison said...

Praying for peace and healing........

Maroo said...

still praying for you guys. We love you.

Anonymous said...

Praying for your family. Love you all!!

Anonymous said...

Praying for your entire family!

~Rissa

God bless..

Anonymous said...

Praying as I have never prayed before!
I will check in often to-day in the hopes of hearing things are improving.
My heart is with you all.
Linda

Jen B said...

Praying and sending good thoughts!

Anonymous said...

We are adding our prayers to all the rest posted here and I'm sure, many others as well. Love to you all. Gramma L.

Anonymous said...

My friend Nan has added you to her church prayer chain as well, may God give you peace
Love Erica

Amber said...

praying for noah right now...

Mir said...

Ugh, I almost couldn't read the end of this post. Praying for Noah still this afternoon!

Anonymous said...

I am praying not only for Noah, but for all of you to feel God comforting you. - Marla Brandt

Pete and Brenda said...

Praying for you all...

Cal said...

You don't know me; I followed a link to your blog.

Noah and you are in my thoughts.

Suzanne said...

Nichole, I just wanted to let you know that there are other Disney-related boards praying for your little boy, and your family right now. Noah seems like a very special little boy, and such a fighter! I pray the he can continue to fight that fight, and that God continues to watch over you all.

Maroo said...

we are still praying for you guys.

We love you!!!!

Elisa said...

Nicole and Brad,
I came over from the DisBoards...I was a wish tripper too....Praying for all of you and little Noah.

Anonymous said...

praying for all of your family

Anonymous said...

Hello. I do not have an account on here, but I just felt moved to let you know I'm praying for Noah and your family. Reading about Noah's wish trip has reinspired me to volunteer at Give Kids The World - I did so in 2007 and I think it's time - seeing Noah's beautiful smile in his pictures inspired me!
Celerystalker on the dis boards

Amber Greenawalt said...

PRAYING Nichole.

Anonymous said...

Are there any updates on how the little guy is doing?

Anonymous said...

where two or more gather in His name - I'm gathering, joining the circle of prayers - Noah and his family and friends are being prayed for by prayer warriors in Illinois - thanks to Maroo!

Sandy

Anonymous said...

May God's love, strength and healing envelop your family and may you feel the support of our prayers.
- Shanda and girls

Anonymous said...

praying for Noah!
Sandie

Anonymous said...

Agreeing for Noah's complete recovery!

hilda said...

Praying!!!! May the Peace of God surround your whole family as you keep vigil over precious Noah.
Thanks for posting, it keeps us informed. Love and prayers, Uncle Dennis and Auntie Hilda

Anonymous said...

I am so sorry about Noah. I pray that he will be able to get soon!!!

Love in Christ,
Cole’s (Caring Openly, Loving Eternally) prayer team
www.colesfoundation.com
Sandy Daron

Michelle said...

We are praying here in rockford, IL.

Anonymous said...

Praying for you Nichole and family.
Noah has the best smile in the world.

Anonymous said...

My prayers are with you all
-Dawn

Cathy said...

Praying for a miracle!

Irene said...

Praying God's comfort for Noah and family!

Linda (khalana) said...

Oh Lord Jesus, please be with this family and little precious Noah!! Lay Your healing hands on him, Lord. Please, we beg You for a miracle! Amen.

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